The Alchemy of Love

Here in DC, the National Cathedral is a place of refuge and retreat and very beloved to me.  We come as pilgrims looking for rest and refuge. Notre Dame matters to art lovers, history lovers, architecture lovers, literature lovers, Paris lovers, French lovers. The destructive fire on Holy Week seems to only have made the pain more acute - for this is a week when we remember the shadows of life and the pain. Consider how lost and abandoned Jesus was.

Float Thru a Field Blend

To hold you when overwhelmed

I concocted this blend to evoke not only the smell of a grassy meadow after a rain, but also to carry me away from my distress. And to support and hold me while I mourned and grieved my lost ambitions and then, once having moved through the sadness, to allow myself to be held and supported so I could simply relax and reset.

On Being Seen on Capitol Hill

This past Wednesday, April 3rd, I participated in Advocacy Day sponsored by Solve ME/CFS and MEAction. I joined over 234 other advocates who spread out over Capitol Hill to more than 224 Senate and House offices to change minds through personal stories, education and facts. Advocacy is empowering. Not everyone is able to channel their anger at the injustice into advocacy and certainly the sickest in our society are often TOO sick to fight for justice.

Spring Podcast Recommendations

I listen to podcasts all the time. When I’d like distraction in my mind from the discomfort in my body, I prefer to just lay back and listen. And there is SO much excellent content out there. I’ve curated some excellent ones for you - some on health, but not all. Because we do not have to be thinking and learning about wellness all the time, right? And I’ve highlighted several specific outstanding episodes from these podcast series too.​ 

On Why Style Matters

This week I discuss why style matters and focus on how we can be more mindful and optimistic :: ease and why it has to be prioritized and what ease means; why being realistic can open up possibilities; how our inner narrative affects our confidence and sense of style and why we need to be kind; and why our feelings and gut reactions need to be honored. Then I offer some specific recommendations which I provide links to below.

Style Despite Sickness

I wanted to interview Sydney Lester of Chic Stripes because she has been so helpful to me as I try to wake up to fashion. Looking better helped me to feel better. And as I started to feeling better and feel more confident and more in my body, I started to feel even better. For once, I managed to create a positive feedback loop. Most of all, she guided me in changing my wardrobe so I am more excited to get up out of bed and get dressed!

Why I Stay Alive

The other day I was scrolling through my favorite photos on my phone, and I rediscovered this quote I took a screen shot of back in December 2015. I loved the ideas and suggestions, but I had no idea who wrote it.  A little googling revealed that Matt Haig was the author. Inspired by his work, I made a list of reasons to stay alive. I encourage you to do so too.

How to Bloom This Spring

And as others focus on spring cleaning or shedding pounds or venturing outside, what does this time of renewal mean for those of us who live with an unpredictable illness every day? How can we embody the spirit of spring when we feel tied to our beds? What can spring mean when renewal seems so far out of our reach?

An 8 Hour Nap in 1 Hour

Yesterday I did something that has been on my “bucket list” for years. And I am so excited to share the experience with you. Read to the bottom to sign up and get a special coupon code if you want to experience what I did too! First some background —